Oh, Dad. It's been over a year since you've passed, and I'm pretty sure I've been through all the stages of grief in the appropriate amount of time and landed in a decent place; I've stopped thinking I can call you or wondering what I should make you for dinner. Or at least I had landed, and then the virus descended on us.
I can't tell you how often Judi and Rosie and Susan and I say to each other "thank goodness Dad wasn't alive for this, because he probably wouldn't have lived through it and would have died alone." As much as we would have wanted you with us longer, we'd never wish that on you.
So, Dad, now that you're gone...I want to thank you again for all that you did to make things easier for me after you left. The contents of that battered metal box and the yellow legal pad you kept drilling me with were the perfect executor tools. You told me, week after week, "I'm worried you're going to have too much to do" because I was the caretaker kid, and you knew that I would be doing most of the work to empty and sell the house and close out your accounts and disburse funds among us girls.
You made that as easy as you could, Dad - in fact, of all the loving things you did, that may have been the most love-filled, because over and over again I saw in your preparations how well you'd thought everything out.
Even the week you decided to stop dialysis and we knew your days were numbered, you handed me a calendar with June 20 circled on it, and it said "If the house is not sold by now, you need to pay <XX>." I still have that calendar somewhere. I couldn't throw it away - it was so YOU.
Still, there are some things I wish I'd asked you during all those evenings I'd sit working while you watched TV. Why didn't I find out more about you as a young man? Why didn't I ask more about Grandma and Grandpa, and more about how you and Mom were as a young couple, other than that you walked up to her in her fur coat after the photography class you both took with a cheesy pickup line: "Is your chauffeur picking you up?" Oh, I also know that you gave her an ironing board for her first birthday with you, which seems an odd gift, but Mom said you told her that's when you knew you wanted to marry her, and you got the ironing board because it was something you'd need when you set up house together. Always thinking, Dad! And always frugal.
I wish I'd gotten to know you well before you got cancer. That was a turning point for you and I, because our relationship was a bit contentious before that. But when you got sick, and we were told it was life-threatening, you chose the hardest but most probable path to a longer life - removing an organ, which changed everything for you, and I remember standing outside the bathroom asking if I could help you while you sobbed in frustration behind that door until you learned how to manage your ostomy. Gosh, you were made of such strong stuff. And then later, when you had kicked cancer's ass but got kidney disease, and changed your life again so you could live... you humbled me with your determination and stoicism. You weren't perfect, but you were perfect for us, and my sisters and I are proud to take your spirit, your kindness, your intelligence (and your quirks) forward in our own lives.
And on this Father's Day, I want to thank you for continuing to show up. You know what I mean: how you used to look for 88 on license plates with me because I told you it was my lucky number, and now I swear I see 88 everywhere, and when I do I say "hi Dad" out loud if I'm alone, and I just think it if I'm not.
Sending you a big 88, Dad. Right out loud.
© 2020 A Bit of Brie/Anitabrie
Sunday, June 21, 2020
Wednesday, February 19, 2020
"I'm Not Going Back"
I didn't realize February would be the month that claimed both of my parents - my mother on Valentine's Day 11 years ago, and my father just a year ago, from February 19 to the end of the month. He actually passed in the wee hours as March 1 was dawning - on one of my sister's birthdays, to her great dismay - but he did all the hard work of dying before then.
I'm still coming to terms with a few things, so I guess if you're reading this you're going to work through them with me.
You see, my father chose to die. Sure, he was 93. Yes, he had a number of health issues, any one of which might have flared up and ended his life in due course. And while I saw a steadily declining man, I also saw someone in full control of his mental faculties, who read the paper cover to cover every day, who still loved a great joke, who got excited about going to McDonald's and getting a free senior coffee, who couldn't wait for his mail to come and paid his own bills.
He even maddeningly offered me navigation ("get in the left lane - now!") every time I drove him to dialysis three times a week.
Dialysis. In the end, that was the method of choice to end his life. Or rather, the denial of it. He had it Monday-Wednesday-Friday for more than a decade, for four hours at a time. And last year, on February 19 - a Tuesday - he said, "I'm not going back."
"You know what this means, Dad? You want to die?" I didn't want him to know I was about to cry. And I was surprised he was setting this in motion. My father was completely terrified of dying. I always hoped he'd be one of those lucky people who drifted off in his sleep.
"Yes, I know. Call the girls." I called my three sisters, rallying the troops from California and Arizona and right here in Maryland. Then I called hospice to get someone to come in and teach us how to help him pass on.
The next two weeks were mostly a blur. At first, he was Dad - able to joke and talk and eat a little, and sit at the dining room table like he always did. Then the constant itching set in - part of the dying process when his body wasn't being cleaned - and he could only sit in his recliner, and in eight days he was bedridden, mostly unresponsive, struggling to breathe, and still trying to scratch. My sisters and I took turns scratching him when his hands feebly wandered over the itchy parts, his arms, his legs, his stomach. We measured his deathbed meds and tried to put oxygen on him and did whatever we could to open the door wide to the next world so he could walk through it and leave us behind.
We were told his skin might smell like ammonia as the toxins grew in his body - it never did. We were also told by his doctors, long before he chose this, that stopping dialysis was a peaceful way to go, that he would just drift away, but that was a lie, a lie that my father clung to when he pulled the dialysis plug. The hospice nurses said that not many people get those tranquil deaths when they stop dialysis. Every morning near the end, my father would wake up and realize he was still here, and with his eyes still shut, call out to himself "Why can't you just die?" It was hard to be him, and hard to be us. All those times I could help him before, and I could do nothing now but sit and tell him he'd been a good father and beg God silently to give him what he wanted. A way out.
I wasn't sure earlier why I started writing this, but now I am. Two things. First, I am worried I didn't do enough for my father while he was alive. Please - don't rush to reassure me. I was a good daughter. A great daughter, even. I know I did my very best. But now that I am rested and not harried from working and his care, now that I have the gift of time I didn't have before, I think about so many things I could have done to make him happier. So I say to you, dear reader, if you are still so fortunate to have one or both parents, do it all. Throw your fatigue out the window, and think of everything you can to love them better and better.
Second, I am awed at my father's courage. Because I knew how very much he feared death, to have beckoned it to come and get him was an act of phenomenal bravery. I hope I have some of that Joseph Brienza heroism in me.
And how funny - I just realized as I was writing the thoughts above that I chose the word "courage" to live by this year. I even have it engraved on a silver bracelet I wear next to my watch. Maybe he steered me toward that word. He never failed to tell me to get in that left lane when I was taking him to dialysis. It would be just like my father to tell me what direction to take now, too.
© 2020 A Bit of Brie/Anitabrie
I'm still coming to terms with a few things, so I guess if you're reading this you're going to work through them with me.
You see, my father chose to die. Sure, he was 93. Yes, he had a number of health issues, any one of which might have flared up and ended his life in due course. And while I saw a steadily declining man, I also saw someone in full control of his mental faculties, who read the paper cover to cover every day, who still loved a great joke, who got excited about going to McDonald's and getting a free senior coffee, who couldn't wait for his mail to come and paid his own bills.
He even maddeningly offered me navigation ("get in the left lane - now!") every time I drove him to dialysis three times a week.
Dialysis. In the end, that was the method of choice to end his life. Or rather, the denial of it. He had it Monday-Wednesday-Friday for more than a decade, for four hours at a time. And last year, on February 19 - a Tuesday - he said, "I'm not going back."
"You know what this means, Dad? You want to die?" I didn't want him to know I was about to cry. And I was surprised he was setting this in motion. My father was completely terrified of dying. I always hoped he'd be one of those lucky people who drifted off in his sleep.
"Yes, I know. Call the girls." I called my three sisters, rallying the troops from California and Arizona and right here in Maryland. Then I called hospice to get someone to come in and teach us how to help him pass on.
The next two weeks were mostly a blur. At first, he was Dad - able to joke and talk and eat a little, and sit at the dining room table like he always did. Then the constant itching set in - part of the dying process when his body wasn't being cleaned - and he could only sit in his recliner, and in eight days he was bedridden, mostly unresponsive, struggling to breathe, and still trying to scratch. My sisters and I took turns scratching him when his hands feebly wandered over the itchy parts, his arms, his legs, his stomach. We measured his deathbed meds and tried to put oxygen on him and did whatever we could to open the door wide to the next world so he could walk through it and leave us behind.
We were told his skin might smell like ammonia as the toxins grew in his body - it never did. We were also told by his doctors, long before he chose this, that stopping dialysis was a peaceful way to go, that he would just drift away, but that was a lie, a lie that my father clung to when he pulled the dialysis plug. The hospice nurses said that not many people get those tranquil deaths when they stop dialysis. Every morning near the end, my father would wake up and realize he was still here, and with his eyes still shut, call out to himself "Why can't you just die?" It was hard to be him, and hard to be us. All those times I could help him before, and I could do nothing now but sit and tell him he'd been a good father and beg God silently to give him what he wanted. A way out.
I wasn't sure earlier why I started writing this, but now I am. Two things. First, I am worried I didn't do enough for my father while he was alive. Please - don't rush to reassure me. I was a good daughter. A great daughter, even. I know I did my very best. But now that I am rested and not harried from working and his care, now that I have the gift of time I didn't have before, I think about so many things I could have done to make him happier. So I say to you, dear reader, if you are still so fortunate to have one or both parents, do it all. Throw your fatigue out the window, and think of everything you can to love them better and better. Second, I am awed at my father's courage. Because I knew how very much he feared death, to have beckoned it to come and get him was an act of phenomenal bravery. I hope I have some of that Joseph Brienza heroism in me.
And how funny - I just realized as I was writing the thoughts above that I chose the word "courage" to live by this year. I even have it engraved on a silver bracelet I wear next to my watch. Maybe he steered me toward that word. He never failed to tell me to get in that left lane when I was taking him to dialysis. It would be just like my father to tell me what direction to take now, too.
© 2020 A Bit of Brie/Anitabrie
Tuesday, February 4, 2020
Robert Edwards
I had a doctor's appointment this morning. It was in a building just 20 minutes from my home; four floors up from the lobby by elevator. I was the first patient, and they took me immediately. I was in and out in 30 minutes.
I left my house at 7:45; I would have been home by 9:15 even if I stopped to refuel. But I took a little detour.
When I rode the elevator back down to the lobby, as the doors opened, I saw a man grappling with his wheelchair. He was quite literally inching toward me, his feet useless to help him push forward, and his arms only able to make small movements. "Don't worry, I'll hold it," I said, and when he got close I stepped out, one hand over the electric eye so the door wouldn't shut, and one hand lifting chair and man just enough to make it over the threshold. He couldn't have weighed more than 90 pounds. "What floor? I'll take you up and get you out," I said.
"Two," he said. "Thank you. So much."
"Oh, sure," I said. This was an easy gift for me to give. I could cover the ground in minutes. Based on what I'd witnessed before, it would have taken ages to travel 20 feet on his own.
I noticed his hair and clothes were dirty, but his sneakers - white ones - were spotless. Of course. He doesn't walk in them. Perhaps he just has someone put them on when he has to leave the house. We reached the second floor, and he said, "My doctor is down the hall."
So I pushed him forward, staring down at the way his hair separated in waves because it was a little greasy, and wondering if he had someone to help him get ready for this appointment; if he took a Metro Access service bus to get here, like the one I investigated for my father but decided was too impersonal for him. I'm no stranger to wheelchairs - my mother was in one for years before she passed - and when we reached the door, I knew it would be easiest to take him in backwards. I leaned down so he could hear me and said, "What's your name? I'll sign you in."
"Robert Edwards." He seemed so small, so solitary. It's been almost a year since my father died, and I know this helplessness. I watched my father bend under the enormity of it, day after day. And he was one of the lucky ones; he had a family member as caretaker and companion. It's hard to be alone and old and weak and sick. Or any one of those things.
I put on my best cheerful voice and said to the two women behind the glass, "Look! I found one of your patients in the elevator! Mr. Robert Edwards is in the house!" They looked up and barely glanced at him, and didn't crack a smile for me, either. No smile! After I was so jocular! I'm not used to being resisted like that. And I hated leaving Robert to the mercy of these joyless women, but I pushed down the guilt because, as I often say to others, we can't save everyone.
"You okay now, Robert?" I asked. He nodded, and I said, ridiculously, "Okay - have a nice day."
A nice day.
I think it's been a very long time since Robert had a nice day. But I sure hope he had a kind doctor, and someone to bring him back down the hall and into the elevator and back to the lobby. He deserves that.
© 2020 A Bit of Brie/Anitabrie
Wednesday, August 28, 2019
Gone But Not Forgotten
It's been a long time since I posted on this blog. I'm doing my "big writing" elsewhere these days, and I sometimes forget about this space where I shared so many thoughts for a few years.Today, this is the perfect place to write.
I'm working on my 45th high school reunion. We're having it mid-September, and last night our committee met to decide such things as what will go on the tables, what our playlist might be, what awards we will give. We talked a little bit about what we will wear, and found our younger selves in the class picture. And at some point, we reviewed the posters of our "Gone But Not Forgotten" classmates. We had one poster for our deceased classmates at our 40th. Now we have two. Another 25 people have passed in the last five years. It's mind-boggling.
I know we are in an age bracket where that happens. The next reunion we will likely graduate to three posters. And as I looked at those hopeful teenage faces, some of whom barely made it to their twenties, others who died in accidents or from cancer or another health issue, I thought about those I knew. Sweet Grady, so tall and thin and quiet and kind. Beautiful Ruth, who lived up the street and would walk to the bus stop with her blond hair wafting behind her. Brilliant, talented Herb, who once made a drawing of me in our art class without me knowing and presented it to me afterward. Paul, who was an awkward, amusing kid, and Linda and Reeves and Carlos and so many others who, when I saw their pictures all together, created a montage of memories... a saucy grin, a gracious word, a shared joke, a busy hallway between classes.
It's a wonderful thing, to live in the hearts and minds of the people who knew us for scores of different, flash-by moments. To be gone but not forgotten. To be remembered with love.
© 2019 A Bit of Brie/Anitabrie
Friday, May 17, 2019
A Good Place
Since my father died and we registered his will, every
week I get two or three letters in the mail from people I don’t know, encased
in cheery pink and yellow envelopes or white business ones – and they all start
out with some version of “Condolences on your loss" and then wind up for the pitch, "Hey - I’d like to buy your
house, all cash, as-is condition, close in 30 days or less!” It’s the sorriest version of a marketing
message I’ve ever seen. It makes me mad, and every time I open one I say
“Vulture!”
Emptying out the house after your final parent is gone
pulls on every heartstring you have. My
family members have each played a role in clearing the collections of my
parents’ lifetimes. We've tagged the things
we want to keep and have taken multiple trips to Value Village to drop off
giveaways: black trash bags stuffed with towels and bedding and throw pillows, boxes full of ancient kitchen tools and dishes and office supplies. My local
sister will take the TV and caned chairs and the bed in the guest room. One
friend took the Scan dining room set with the retractable leaves, the beige
microfiber sleeper sofa purchased two years ago that’s hardly been used, and
the one good navy leather recliner that Mom used to sit in. The matching
recliner – worn at the top and arms from Dad’s head and hands and patched
lovingly by me with adhesive-backed faux leather – was the one my father
practically lived in. He refused multiple offers of a new one, stubbornly clinging to the one he'd broken in. It was so "him" I couldn’t bear the sight of it, so I begged my
friend and contractor B. to take it away right after Dad died. He sent me a
picture of it on the back of his truck before he hauled it off, his shadow
visible on the tailgate, with the note “Got it.” It was like seeing my father’s
body taken away a second time.
I’ve learned a lot of things since my father’s death, and
in my role as executor of the estate. It’s a lot of work. And a lot of paper –
including the aforesaid “let me buy your father's house” letters. I didn’t foresee the number of threads that
would need to be tied off after a death, or the pain that comes with otherwise
simple administrative tasks. I make call after call to insurance companies and
banks and lawyers and have to say over and over, “My father died in March,
and….” Everything has a little sting of
finality: cancelling the home phone number, finding out when the property taxes
must be paid, buying three-packs of 10x13” manila envelopes to package up
requests to close out accounts, with letters of administration to prove I am the
personal representative and my father’s death certificate. I am weary
of seeing “Decedent’s name” and “Date of death” at the top.
Grief is a constant, but not the
throw-yourself-on-the-bed-and-cry kind. It shows up in different ways and in
the most inopportune places, like the grocery store, when I think for a second,
“I’ll get Dad some steamed shrimp” or when I see a small elderly man bent over a
walker like he used to, or find an old birthday card where he’s written, “I
don’t know what I’d do without you.” Not
having him to care for gives me back a big chunk of time, and for weeks, the
idleness has made me restless and edgy…but little by little I’m getting on
board with this new phase. I’m the bounce-back girl, after all.
And yesterday – ah, yesterday something beautiful happened. My
father’s house will settle in a week, and I invited the buyers to walk through
and see if they want any remaining furniture before I do a final purge. I’d
only met them in passing before, leaving the house as the husband and wife and
two daughters – one of them an autistic 10-year-old – came to see it for the
first time.
Just the husband showed up this time – Y, a
round-cheeked, cheerful black-haired and bearded fellow with a short, sturdy body in a
polo shirt and shorts and running shoes, with his sister E, almost a
body-double, minus the beard. The first thing he did was tell me how sorry he
was about my father. His sister, who doesn’t speak much English, held both
hands to her heart and then out to me to tell me the same thing. He said, “The second I walked into this house
it felt like a good place, a happy place.”
I walked them around, pointing out the art deco bureaus
that were my parents’ (and that my sisters and I hated to just give away,
because they are now antiques) and he said, “I love these! I’ll refinish them!”
E nodded and smiled, only understanding that this was good, her brother was
happy, and sensing that I was pleased with whatever he was saying. The same
thing happened with the heavy oak furniture in the guest room that had been my
sister’s, and then mine, when we were teenagers. There’s a part in the front of
each piece that is carved, a lovely block of ivy emerging from the wood, and Y said, “This is beautiful. And guess what? I am a wood carver. I will make you
something and bring it to the closing.”
Are you supposed to love your buyer when you sell a
house? Because I was starting to, and I know my father would have loved him,
too.
When we went downstairs, he said he wanted to show E the
back yard – which is massive for such a small house – and said to me, “This is
so good for my autistic daughter. She hates to be out in public, and she can
run and play here without other people around.” He spoke to E in Spanish,
who grinned and shrugged, and Y turned to me to translate, “My sister has a
business in El Salvador, but our parents are gone and it is just the two of us
left. I told her I want her to sell the
business and come live with us permanently. I’m going to break through the wall
here and make E a nice bedroom.”
Back upstairs, he told me his whole family is living on
the top floor of a house right now, and the space they will have in Dad’s house
is going to be magical to them. He told me what he’ll do with the house: pull
up the carpets and redo the floors, paint, texture the ceilings to cover the
imperfections, strip all the cabinets in the kitchen and paint them a dark
color, and replace the countertops. I was charmed by his excitement, by the way
his speech quickened and his eyes lit up. He couldn’t stop smiling. This was a
man living a dream, and giving his family their first real home.
And then he said, “I want to make this easy for you.
Don’t worry about emptying the rest of the house. Just move what you need and
leave all the rest – I’ll take care of it.” I nearly cried with relief – I
wouldn’t have to do that crazy, desperate, hysterical dance that happens when
you’re moving out of a house and suddenly it’s midnight before your closing
date and every last scrap of paper must go.
Before he and E left, he gave me his cell and told me
he’d like me to come see it when he’s worked on it. As I drove home, I thought
about what my father had said to me many, many times over several years: “I’m
worried that you’re going to have to empty this house out mostly on your own.”
Father love is powerful, and I think he must have had a hand in connecting Y with us to solve two problems: a daughter who
needed some help, and a family who needed a home.
This I know: it will be a good place, a happy place.
© 2019 A Bit of Brie/Anitabrie
© 2019 A Bit of Brie/Anitabrie
Tuesday, January 1, 2019
Another Chance To Get It Right
Remember how it felt at the start of every school year? Pencils sharpened and that fresh new expanse of lined paper stretching out with great promise, books at the ready, outfit picked out for the first day? There was always the possibility that this year you'd leave more time to study, work just a little harder on a project, make great new friends, ace math tests, maybe even participate in a history discussion with certainty.That's what we do at the threshold of a calendar change like this one. As Oprah Winfrey said, "Cheers to a new year and another chance for us to get it right." It's like amnesty for our lives: turn in your mistakes, your social gaffes, your family squabbles, your jealousy; offer up the moments you chose disrespect over honor or went for the easy, embarrassing humor at someone's expense; surrender all those times you could have loved someone more but didn't. You can be better now!
I don't have a lot of regrets as a human being - I think I do a fairly good job of it - but I am imperfect as we all are. I am so arrogant about my usually facile writing skills that I don't always map out the right amount of time to complete a project or piece. I have a small lime-green wooden plaque on the wall in my kitchen that says, "Let me drop everything and work on your problem," given to me by a longtime pal who recognizes that I am more apt to put my own life on hold and my own commitments at risk to solve something for another. (Yes, I know that's a good thing...but to those on the other side of my commitments, not so much.) I wish I could weather the storm of my father's speedy decline this past year and at present without any resentment toward my sisters because I'm the one usually on deck, or the irritation I feel when my father snaps at me: my funny, sweet dad who is changing before my eyes. I'd like to be a better friend; more available and more impulsive about meeting up. I'd also like to take exceptional care of myself, but alas - that "drop everything" tendency affects this, too, so I'm kind of a mess! Yeah, I want to be better at all of this.
Like most people, I don't make resolutions anymore. But I like the idea that several friends have adopted, of choosing one word for the new year. (By the way, that is a terrible thing to ask a writer, because we turn over each one like we're tasting it and trying to figure out all of the ingredients. When you only get one word, it had better be a freaking good one.)
Because I tend to beat myself up so much over nearly everything, I chose this one: progress. My mother often used this Italian phrase when we were stuck on homework: "a poco a poco tutto viene fatto." Little by little, all gets done. I use it often in my adult life. If I choose progress, I'm always moving forward, always accomplishing something toward the goal, I'm practicing self-care, I'm free to help others without giving up too much of what I need, I can improve in my family and friend relationships without having to be a saint (it is SO draining to be a saint, don't you think?)...it covers all bases with just the right amount of pressure and encouragement!
So that's settled. I'm moving into this shiny new year with another chance to get it right. Want to come with?
© 2019 A Bit of Brie/Anitabrie
Cheers to a new year and another chance for us to get it right.
Oprah Winfrey
Read more at: https://www.brainyquote.com/quotes/oprah_winfrey_676234?src=t_new_year%27s
Read more at: https://www.brainyquote.com/quotes/oprah_winfrey_676234?src=t_new_year%27s
Cheers to a new year and another chance for us to get it right.
Oprah Winfrey
Read more at: https://www.brainyquote.com/quotes/oprah_winfrey_676234?src=t_new_year%27s
Read more at: https://www.brainyquote.com/quotes/oprah_winfrey_676234?src=t_new_year%27s
Cheers to a new year and another chance for us to get it right.
Oprah Winfrey
Read more at: https://www.brainyquote.com/quotes/oprah_winfrey_676234?src=t_new_year%27s
Read more at: https://www.brainyquote.com/quotes/oprah_winfrey_676234?src=t_new_year%27s
Tuesday, August 7, 2018
Take a Powder (Room)
I redid my powder room last fall. If it's possible to be in love with a bathroom, I am. Everything in it—the walls, the tile, the framed print, the mirror, the cabinet and sink/counter; even the guest towel holder and trashcan and toilet-brush-disguised-as-floor-art were carefully selected. And every time I go in there, even if it's just to put something under the counter or sweep the floor, I feel like saying "namaste." It's soothing, with a palette of beiges and a pale not-quite-seafoam blue. It makes me happy. And I'm not the only one who feels this way about my sweet little bathroom. It's a crowd-pleaser! Whoever uses it - male and female - always has something nice to say about it.
It's crazy to love this spot so much, but it's not really just a bathroom. It's my "control room." In the last 12 months, I've dealt with surgery and a difficult recovery, a nonagenarian father who is declining by the day, a stressful political environment and choppy personal and professional waters; so many things that were beyond my influence. This bathroom, this little gem, this island of calm, is a place that's always steady and pretty and quiet, even if my life isn't. It's something exceptional I made (though my contractor will likely think he deserves the credit); clear evidence—even on days I don't feel very talented—that I can plan and execute and create.
I feel about my bathroom the way I do when I have written something especially well: I can't make it any better. And just as I often go back to read something special that I've composed, I pop into this room whenever I get the chance. It's simply pee-utiful.
©2018 A Bit of Brie/Anitabrie
Sunday, June 17, 2018
Those Heartbreaking Brown Shoes
My father is dying. It might be next week or next month or next year, but somehow, he has made the transition since January from a relatively sturdy old man to a delicate elderly one; his once-beautiful fingers drawing up into claws, a hump forming underneath his wool vest on his bent-over back, his clothes clownishly big on him. It doesn’t help that he’s lost two teeth from his dentures recently, or that the age spots on his face and arms seem to be multiplying or expanding. My father, who used to be movie-star handsome, is disintegrating before my eyes. And I'm helpless to stop it.
Sunday morning. I picked him up at 7 a.m. to take him
to Holy Cross hospital. Yesterday, when he was having trouble breathing, my
older sister Susan and brother-in-law Jeff, visiting from Phoenix, took him -
on his doctor’s orders - to a local imaging center to get a chest X-ray. It
showed fluid around his lungs, and he was told to go immediately to the
emergency room, but he refused.
After much cajoling from my sister and I, he agreed to go Sunday if I
would take him early to reduce the wait. I drive up and he is waiting outside
his front door with his walker, so that he doesn’t wake my sister and her
husband. He’s wearing a sweater that’s not warm enough for the early chill, and
his
favorite cap – it’s the one with the Marine insignia. It never fails when he
wears it that someone will stop by to thank him for his service. Last month
when I took him for lunch at Panera's, a woman came over, took his hand and
said thanks, and then asked, "When did you serve?" My father said,
"In the last war." When she left, I said, "Dad! You didn’t serve
in the last war!" “Well,” he said, it was the last one for me."
He looks small and vulnerable, and I
help him into my front seat, lifting the left leg and then the right, wincing
at the moans those little movements bring. He’s been letting me buckle him in
for months now, pulling his arms over his chest and holding tight fists
together as the metal clip finds its mate. He’s more and more childlike these
days, and I often joke to my friends that I’m the “reverse soccer mom,” running
my father to dialysis on Monday/Wednesday/Friday; going home to knock out an
article or some housework; then picking him up, making a McDonald’s
drive-through run (senior coffee with four creams, six Chicken McNuggets with two
barbecue sauce packets, and a McDouble with cheese), and taking him home to eat at his
dining room table. He’s gotten fixated on McDonald’s in recent years, though he
never liked it before. I know it’s not healthy, but what the hell? He’s 92, and he wants it… and
I must admit they make a good cup of coffee.
I’m always extra cheerful when I’m
with my father, maybe to balance out his sadness. This morning, I chirp “G’day,
mate!” before I shut the car door, fold and install his walker in my trunk, and
get in to start the car. I remember to turn the radio off because with my
father’s hearing loss, it’s mostly a bunch of static to him. “You feeling okay,
Dad?” I say. He doesn’t speak, just nods. I know he hates this merry-go-round
of doctors and hospitals. My father was always so strong, and this life doesn’t
suit him – it embarrasses him. “It’s good we’re going so early,” I say. “We’ll
be taken quickly.” Another miserable nod.
I don’t promise he’ll be going home
today, because I’m pretty sure they’ll keep him. We ride the 15 minutes to the
hospital in silence, and I swing into the lane for the emergency room, grateful
there are only two cars in the small parking lot, hoping it means he can get in
quickly. Sure enough, as we enter I can see only one other person waiting. In
seconds, we are called by a petite Indian nurse with “Gathika” on her name tag, who checks him in
and takes my father’s blood pressure, then tells us to walk through the
automatic doors to the senior section of Emergency, where he is assigned the
first room. My father seems to be the only patient. One of the nurses, a brisk young blonde girl in pink scrubs, hands me
a gown, says “I’m Stephany, he can leave his pants and shoes on,” and starts
taking my father’s vitals. When she steps out, I help my father take off his
undershirt and shirt, thankful they are both clean. I notice the shirt is
frayed near the top button and make a mental note to rotate it out of his
wardrobe. He is tired from rising so early and keeps yawning. After Stephany
comes in a few more times to insert a port and hook him up to a monitor, and a
doctor stops by to tell us Dad is going to be admitted in a few hours, he falls
asleep, his mouth open enough for me to see the two missing teeth, his gown
falling from one bony shoulder, his scratched brown shoes sticking up from
under his blanket.
I went through a
similar health scenario with my mother nine years ago – increasing visits to
doctors and hospitals, and then the decline, and then she died. Only my father was younger and stronger then, and bore a lot of the driving and the
worry. I had one of my best moments with my mother as she lay on a gurney in a
hospital hallway. She was already losing her mental edge, and I asked her,
“What have you liked best about your life, Mom?” and she smiled like an angel, her
tiny face framed in a fringe of black and grey hair, her eyes squinched up the
way I loved, and said, “Oh, it was always you kids.”
My father is
stirring, scratching at his wrist where Stephany has added a pink “LIMB ALERT”
and a red “ALLERGY” bracelet to his admittance wristlet. My father has had two
knee replacements and one revision, is allergic to latex, had his bladder
removed after fighting cancer 20 years ago, requiring his use of an ostomy bag,
and has been on dialysis for 10 years after his kidneys failed. I know the four
medications he takes, and the dosage, and I can reel this information off as if
it’s mine. He is a warrior, and I have watched him take each hit on his health
with stoicism, except the day he found out, after making it through cancer,
that his kidneys weren’t functioning. “Why did I have to get two things?” he
asked me, despondently, and I can’t remember if he voiced his perceived wrong
any further, but that’s how it sounded, and in my head I said it: “I know, Dad
- it’s not fair.”
It’s already
10:30, and soon my sister Susan will be here to relieve me. She’s an attorney
who practices in the health field, and often asks pointed
questions of doctors that start with, “I’m not a doctor, but” and
include information she has read or heard about. I
love when this happens, and I hope when she comes the doctor returns then, too,
so I can sympathy-smile at him while she's talking, because I already know I'm not a doctor. I don't even need to say it.
I
go down the hall to use the bathroom, noticing that since we arrived there are
six more patients, one a woman in the space right next to the bathroom, and I
can hear her whimpering through the walls. It’s all such a cry for help, and I
feel for her, too, my compassion boundless in a place like this, where you
would not come if all was well. I know my father will be mad when he wakes up -
that he can’t go home, that he will have to sleep in a strange bed and will worry
about his ostomy bag being handled by other people. He will want his navy-blue
leather chair in front of his TV and his orderly kitchen and his black plaid
flannel pajama pants. He will want to be the master of his domain, instead of a
patient at the mercy of unpredictable visits by nurses to check his temperature
or invade his privacy. I leave the bathroom and wonder, as I have
many times before, if this is the last trip to the hospital; if I will have to
bring those beat-up brown shoes he won’t part with home in a plastic bag,
crying as it lays on the seat next to me. I know that one day will be the last day, and tears rim my eyes at the thought; then one spills over and rolls down my right cheek. I brush it away, and as I reach to pull back the curtain to my father’s room, I hear a woman saying, “I’m not a doctor, but…”
©2018 A Bit of Brie/Anitabrie
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